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| U.S. to study freakish ailment | |
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| Tweet Topic Started: Feb 5 2008, 02:04 AM (296 Views) | |
| Mystical | Feb 5 2008, 02:04 AM Post #1 |
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U.S. to study freakish ailment — is it real? Morgellons patients describe erupting sores, fibers sprouting from skin ATLANTA - It sounds like a freakish ailment from a horror movie: Sores erupt on your skin, mysterious threads pop out of them, and you feel like tiny bugs are crawling all over you. Some experts believe it's a psychiatric phenomenon, yet hundreds of people say it's a true physical condition. It's called Morgellons, and now the government is about to begin its first medical study of it. The U.S. Centers for Disease Control and Prevention is paying California-based health care giant Kaiser Permanente $338,000 to test and interview patients suffering from Morgellons' bizarre symptoms. The one-year effort will attempt to define the condition and better determine how common it is. The study will be done in northern California, the source of many of the reports of Morgellons (pronounced mor-GELL-uns). Researchers will begin screening for patients immediately, CDC officials said Wednesday. A Kaiser official expects about 150 to 500 study participants. Morgellons sufferers describe symptoms that include erupting sores, fatigue, the sensation of bugs crawling over them and — perhaps worst of all — mysterious red, blue or black fibers that sprout from their skin. They've documented their suffering on Web sites. Some doctors believe the condition is a form of delusional parasitosis, a psychosis in which people believe they are infected with parasites. In the study, volunteers will get blood tests and skin exams, as well as psychological evaluations, said Dr. Michele Pearson, who leads a CDC task force overseeing the study. Pearson suggested the study will help determine if Morgellons is the same as delusional parasitosis or something new. Study participants will be drawn from Kaiser's 3.4 million health insurance customers living mainly in the Sacramento and San Francisco areas and as far south as Fresno. CDC officials acknowledged the study is limited and the results won't give a complete picture of the problem. Randy Wymore, an Oklahoma State University pharmacologist, who believes the condition is not a psychiatric one, says there is distrust by some Morgellons sufferers toward the new study. Some of these patients who are Kaiser Permanente members have said they don't like the way they've been treated by Kaiser doctors and probably won't participate, said Wymore, who formerly was a research director for a patient group and hears constantly from Morgellons patients. "They felt that Kaiser was particularly unreceptive to treating them for anything other than a psychiatric disorder," said Wymore. A Kaiser official said he had not heard such complaints. No patient will be excluded from participation, even if a doctor previously determined the problem was psychological, said Dr. Joe Selby, director of research for Kaiser Permanente Northern California. http://www.msnbc.com |
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| GreatWhiteHorse | Feb 5 2008, 02:40 AM Post #2 |
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Friend of Caesar
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Yeah...Morgellons. I have to admit that this is scary. I have heard a lot about Morgellon's over the last few years and I think there are too many people reporting it for it to be totally made up, right? Well, that got me thinkin'. It's like alien abduction. See, I believe in a sort of collective subconscious. I think it is generally created/ruled by the culture we live in at the time. I think people hear about things and it lends itself to whatever they were already thinking or even creates a new ailment/experience. People have these parasitosis problems, they research their symptoms, hear about Morgellon's and voila! BUT...The fact that there is legitimate research and funding going on now is interesting (and a bit scary) indeed. Unfortunately the people who believe they have Morgellon's will most likely reject anything that says 'Morgellon's does not exist'...that's the way those kinds of psychoses work. |
![]() The only way to get rid of a temptation is to yield to it. -Oscar Wilde | |
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| Mystical | Feb 5 2008, 03:28 AM Post #3 |
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Exactly GWH they already have their diagnosis and nothing will sway their opinion otherwise. What if the diagnosis is wrong? |
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| Darknight | Feb 5 2008, 06:27 AM Post #4 |
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Higher Species
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That sounds scary.
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| Mystical | Feb 6 2008, 01:38 AM Post #5 |
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Yes very scary! |
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| Ella | Feb 7 2008, 10:21 PM Post #6 |
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Sweet Goddess
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I remember hearing something about this illness ages ago so it's not a new disease. It sounds horrible you start feeling itchy just thinking of it. |
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| Mystical | Feb 8 2008, 01:00 AM Post #7 |
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I heard about it a while back too ella. Can you imagine going through it eeeek!
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| ravenheart_05 | Feb 8 2008, 02:07 AM Post #8 |
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Traveler
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WOW!! This is the first time I have ever heard of this! It makes me queesy just thinking about it. My feeling is that even if it does exist, the Insurance companies will make sure that it is not a "Real" disease, unless of course it benefits their bottom line!! |
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| Mystical | Feb 8 2008, 03:27 AM Post #9 |
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Insurance companies can basically do what they want to do. They seem to be above the law in most cases. |
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8:32 PM Jul 10